作者: Erin Holve , Courtney Segal , Marianne Hamilton Lopez , Alison Rein , Beth H. Johnson
DOI: 10.1097/MLR.0B013E318257A66B
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摘要: Background: AcademyHealth convened the Electronic Data Methods (EDM) Forum to collect, synthesize, and share lessons from eleven projects that are building infrastructure using electronic clinical data for comparative effectiveness research (CER) patient-centered outcomes (PCOR). This paper provides a brief review of participating framework common challenges. Methods: EDM staff conducted text relevant grant programs’ funding opportunity announcements; projects’ plans; available information on projects' websites. Additional was obtained presentations provided by each project; phone calls with project principal investigators, affiliated partners, Agency Healthcare Research Quality (AHRQ); six site visits. Results: Projects in developing innovative strategies address set methodological, informatics challenges, here identified framework. The networks represent more than 20 states include range partnership models. vary substantially size, 11,000 7.5 million individuals. Nearly all AHRQ priority populations conditions addressed. Discussion: In projects, is focused identifying sharing learned advance national dialogue use conduct CER PCOR. These efforts have shared goal addressing challenges traditional studies sources, aim build generate evidence support learning health care system can improve patient outcomes.