The Pediatric Cancer Quality of Life Inventory-32 (PCQL-32). II. Feasibility and range of measurement.
作者： James W. Varni , Cheryl A. Rode , Michael Seid , Ernest R. Katz , Amy Friedman-Bender
关键词:
摘要: The Pediatric Cancer Quality of Life Inventory-32 (PCQL-32) has been developed to be a standardized assessment instrument assess systematically pediatric cancer patient's health-related quality life (HRQOL) outcomes. Multidimensional serial measurement patients' HRQOL in Phase III randomized controlled clinical trials is increasingly being recognized as an essential component evaluating the comprehensive health outcomes modern antineoplastic treatment protocols. 32-item PCQL-32 short form was empirically derived from PCQL long (84-87 items), which administered 291 patients and their parents during various stages treatment. feasibility (percentage missing values per item) range [percentage minimum (floor effect) maximum (ceiling possible scores] calculated for five scales total scale score. Feasibility very good, with less than .01% values. Range full, no ceiling effects (higher symptoms/problems) low moderate floor (lower symptoms/problems). demonstrated good measurement. In its form, practical trials. Future studies will test utility brief measure monitoring children adolescents cancer.
springer.com
sci-hub.se 参考文章(30)
Bonomi Ae, Cella Df, Measuring quality of life: 1995 update. Oncology. ,vol. 9, pp. 47- 60 ,(1995)
James W. Varni, Ernest R. Katz, Michael Seid, Daniel J. L. Quiggins, Amy Friedman-Bender, Cynthia M. Castro, The Pediatric Cancer Quality of Life Inventory (PCQL). I. Instrument Development, Descriptive Statistics, and Cross-Informant Variance Journal of Behavioral Medicine. ,vol. 21, pp. 179- 204 ,(1998) , 10.1023/A:1018779908502
C. A. DeLaat, B. C. Lampkin, Long‐term survivors of childhood cancer: Evaluation and identificationof sequelae of treatment CA: A Cancer Journal for Clinicians. ,vol. 42, pp. 263- 282 ,(1992) , 10.3322/CANJCLIN.42.5.263
Avi Madan-Swain, Ronald T. Brown, Cognitive and Psychosocial Sequelae for Children with Acute Lymphocytic Leukemia and Their Families Clinical Psychology Review. ,vol. 11, pp. 267- 294 ,(1991) , 10.1016/0272-7358(91)90104-3
Andrew S. Bradlyn, Carole V. Harris, Leslie E. Spieth, Quality of life assessment in pediatric oncology : a retrospective review of phase III reports Social Science & Medicine. ,vol. 41, pp. 1463- 1465 ,(1995) , 10.1016/0277-9536(95)00114-M
Elazar J. Pedhazur, Liora Pedhazur Schmelkin, Measurement, Design, and Analysis: An Integrated Approach ,(1991)
Andrew S. Bradlyn, A. Kim Ritchey, Carole V. Harris, Ida M. (Ki) Moore, Richard T. O'Brien, Susan K. Parsons, Katherine Patterson, Brad H. Pollock, Quality of life research in pediatric oncology: Research methods and barriers Cancer. ,vol. 78, pp. 1333- 1339 ,(1996) , 10.1002/(SICI)1097-0142(19960915)78:6<1333::AID-CNCR24>3.0.CO;2-0
Marie-Louise Essink-Bot, Paul F. M. Krabbe, Gouke J. Bonsel, Neil K. Aaronson, An Empirical Comparison of Four Generic Health Status Measures: The Nottingham Health Profile, the Medical Outcomes Study 36-Item Short-Form Health Survey, the COOP/WONCA Charts, and The EuroQol Instrument Medical Care. ,vol. 35, pp. 522- 537 ,(1997) , 10.1097/00005650-199705000-00008
A Mchomey Colleen, John E Ware Jr, ER Anastasia, The MOS 36-Item Short-Form Health Survey (SF-36): II. Psychometric and clinical tests of validity in measuring physical and mental health constructs. Medical Care. ,vol. 31, pp. 247- 263 ,(1993) , 10.1097/00005650-199303000-00006
Bradlyn As, Harris Cv, Zaboy K, Ritchey Ak, Warner Je, An investigation of the validity of the quality of Well-Being Scale with pediatric oncology patients. Health Psychology. ,vol. 12, pp. 246- 250 ,(1993) , 10.1037//0278-6133.12.3.246