A Review of Pediatric Palliative Care Service Utilization in Children With a Progressive Neuromuscular Disease Who Died on a Palliative Care Program
作者： Charles Ho , Lynn Straatman
关键词:
摘要: Recent studies and consensus statements have expressed the need to involve palliative care services in of children with progressive neuromuscular diseases (PMD), yet there been no reviews utilization by who died on a program. We conducted retrospective chart review all had PMD single-center Twenty cases were identified. Services utilized these patients included respite care, transition services, pain symptom management, end-of-life care. Prominent symptoms last 24 hours life respiratory distress, pain, nausea/vomiting, anxiety; however, management was very good. Utilization differed depending disease trajectory, playing critical role PMD. Good can be achieved.
sagepub.com
sci-hub.se 参考文章(17)
Ross Drake, Judy Frost, John J Collins, The symptoms of dying children Journal of Pain and Symptom Management. ,vol. 26, pp. 594- 603 ,(2003) , 10.1016/S0885-3924(03)00202-1
C. Feudtner, D. A. Christakis, F. J. Zimmerman, J. H. Muldoon, J. M. Neff, T. D. Koepsell, Characteristics of deaths occurring in children's hospitals: implications for supportive care services. Pediatrics. ,vol. 109, pp. 887- 893 ,(2002) , 10.1542/PEDS.109.5.887
L.K. Fraser, J. Aldridge, S. Manning, S. O’Leary, M. Miller, R. McCulloch, A.M. Childs, Hospice provision and usage amongst young people with neuromuscular disease in the United Kingdom European Journal of Paediatric Neurology. ,vol. 15, pp. 326- 330 ,(2011) , 10.1016/J.EJPN.2011.02.003
Bruce P. Himelstein, Joanne M. Hilden, Ann Morstad Boldt, David Weissman, Pediatric palliative care. The New England Journal of Medicine. ,vol. 350, pp. 1752- 1762 ,(2004) , 10.1056/NEJMRA030334
Debra Brandon, Sharron L. Docherty, Joshua Thorpe, Infant and child deaths in acute care settings: implications for palliative care. Journal of Palliative Medicine. ,vol. 10, pp. 910- 918 ,(2007) , 10.1089/JPM.2006.0236
Kathleen L. Meert, Sherylyn H. Briller, Stephanie Myers Schim, Celia S. Thurston, Exploring parents' environmental needs at the time of a child's death in the pediatric intensive care unit. Pediatric Critical Care Medicine. ,vol. 9, pp. 623- 628 ,(2008) , 10.1097/PCC.0B013E31818D30D5
Brian S Carter, Matthew Howenstein, Mary Jo Gilmer, Pat Throop, Dan France, James A Whitlock, Circumstances surrounding the deaths of hospitalized children: opportunities for pediatric palliative care. Pediatrics. ,vol. 114, ,(2004) , 10.1542/PEDS.2003-0654-F
Rebeca Arias, Jennifer Andrews, Shree Pandya, Kathleen Pettit, Christina Trout, Susan Apkon, Jane Karwoski, Christopher Cunniff, Dennis Matthews, Timothy Miller, Melinda F Davis, F John Meaney, None, Palliative care services in families of males with duchenne muscular dystrophy Muscle & Nerve. ,vol. 44, pp. 93- 101 ,(2011) , 10.1002/MUS.22005
C. Feudtner, R. M. Hays, G. Haynes, J. R. Geyer, J. M. Neff, T. D. Koepsell, Deaths attributed to pediatric complex chronic conditions: national trends and implications for supportive care services. Pediatrics. ,vol. 107, ,(2001) , 10.1542/PEDS.107.6.E99
Chris Feudtner, Dimitri A. Christakis, Frederick A. Connell, Pediatric Deaths Attributable to Complex Chronic Conditions: A Population-Based Study of Washington State, 1980–1997 Pediatrics. ,vol. 106, pp. 205- 209 ,(2000)