Researcher Practices on Returning Genetic Research Results

摘要: Background/Aims: As genetic and genomic research proliferates, debate has ensued about returning results to participants. In addition consideration of the benefits harms participants, researchers must also consider logistical financial feasibility results. However, little data exist actual researcher practices. Methods: We conducted an online survey 446 corresponding authors genetic/genomic studies in United States published 2006–2007 assess frequency with which they considered, offered to, or actually returned results, what factors influenced these decisions, method communicating Results: The response rate was 24% (105/446). Fifty-four percent respondents considered issue 28% return individual Of those who during study planning phase, most common were whether deemed clinically useful (18%) respect for participants (13%). Researchers had a medical degree on children significantly more likely offer compared Ph.D. only. Conclusions: speculate that issues associated clinical validity dominated concerns time expense given prominent continuing ethical debates surrounding genetics genomics research. substantial number did not suggests institutional review boards need devote attention topic are interested.