The Victorian Lung Cancer Registry pilot: improving the quality of lung cancer care through the use of a disease quality registry

摘要: Lung cancer remains a major disease burden in Victoria (Australia) and requires complex multidisciplinary approach to ensure optimal care outcomes. To date, no uniform mechanism is available capture standardized population-based outcomes thereby provide benchmarking. The establishment of such data platform is, therefore, primary requisite enable description process outcome lung drive improvement the quality provided individuals with cancer. A registry pilot has been established prospective on all adult patients clinical or tissue diagnoses small cell non-small Steering management committees governance supervise indicator selection. Quality indicators were selected following extensive literature review evaluation practice guidelines. minimum dataset training by collectors facilitated using web-based portal. Case ascertainment regular institutional reporting ICD-10 discharge coding. Recruitment optimized provision opt-out consent. collection set optimizes capacity for harmonized capture. Data commenced variety settings reflecting metropolitan rural, public, private health institutions. provides scope construction risk-adjusted model access policy escalation outliers established. Victorian Cancer Registry unique confirm assessment across stakeholders.