作者: Sarah Cunningham-Burley , Anne Kerr , Julia Swallow , Emily Ross , Choon Key Chekar
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摘要: What does it mean to personalise cancer medicine? Personalised medicine explores this question by foregrounding the experiences of patients, carers and practitioners in UK. Drawing on an ethnographic study research care, we trace patients’, carers’ practitioners’ efforts access interpret novel genomic tests, information treatments as they craft personal collective futures. Exploring a series case studies diagnostic experimental therapies, book charts different kinds care work involved ways which benefits opportunities are unevenly realised distributed. Investigating these against backdrop policy professional accounts ‘big’ future personalised healthcare, authors show how hopes invested via multifaceted, contingent and, at times, frustrated everyday complexities living working with cancer. Tracing difficult painstaking making sense data, results predictions, futures crafted across policy, practice accounts. This is only investigate depth reshaping professionals uneven partial ways. Applying feminist lens that focuses inclusions exclusions, explore new expertise, relationships collectives inconsistent their recognised valued process.