Personalised cancer medicine: Future crafting in the genomic era

作者: Sarah Cunningham-Burley , Anne Kerr , Julia Swallow , Emily Ross , Choon Key Chekar

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摘要: What does it mean to personalise cancer medicine? Personalised medicine explores this question by foregrounding the experiences of patients, carers and practitioners in UK. Drawing on an ethnographic study research care, we trace patients’, carers’ practitioners’ efforts access interpret novel genomic tests, information treatments as they craft personal collective futures. Exploring a series case studies diagnostic experimental therapies, book charts different kinds care work involved ways which benefits opportunities are unevenly realised distributed. Investigating these against backdrop policy professional accounts ‘big’ future personalised healthcare, authors show how hopes invested via multifaceted, contingent and, at times, frustrated everyday complexities living working with cancer. Tracing difficult painstaking making sense data, results predictions, futures crafted across policy, practice accounts. This is only investigate depth reshaping professionals uneven partial ways. Applying feminist lens that focuses inclusions exclusions, explore new expertise, relationships collectives inconsistent their recognised valued process.

参考文章(184)
Joanna Goven, Vincenzo Pavone, The Bioeconomy as Political Project A Polanyian Analysis Science, Technology, & Human Values. ,vol. 40, pp. 302- 337 ,(2015) , 10.1177/0162243914552133
Michael Arribas-Ayllon, Srikant Sarangi, Angus Clarke, Promissory strategies of personalisation in the commercialisation of genomic knowledge Communication in medicine. ,vol. 8, pp. 53- 66 ,(2011) , 10.1558/CAM.V8I1.53
Nicola Mead, Peter Bower, Patient-centredness: a conceptual framework and review of the empirical literature. Social Science & Medicine. ,vol. 51, pp. 1087- 1110 ,(2000) , 10.1016/S0277-9536(00)00098-8
José Van Dijck, Thomas Poell, Understanding Social Media Logic Media and Communication. ,vol. 1, pp. 2- 14 ,(2013) , 10.17645/MAC.V1I1.70
Maria Puig de la Bellacasa, Matters of care in technoscience: assembling neglected things. . Social Studies of Science. ,vol. 41, pp. 85- 106 ,(2011) , 10.1177/0306312710380301
Arthur W. Frank, Survivorship as Craft and Conviction: Reflections on Research in Progress Qualitative Health Research. ,vol. 13, pp. 247- 255 ,(2003) , 10.1177/1049732302239601
Adele E. Clarke, Laura Mamo, Jennifer R. Fishman, Janet K. Shim, Jennifer Ruth Fosket, Biomedicalization: Technoscientific Transformations of Health, Illness, and U.S. Biomedicine American Sociological Review. ,vol. 68, pp. 161- 194 ,(2003) , 10.2307/1519765