Qualification and provision of physicians in the context of the National Policy on Comprehensive Care of People with Rare Diseases in the Brazilian National Health System (SUS)

作者: Marcelo Marcos Piva Demarzo , Lucimar Retto da Silva de Avó , Débora Gusmão Melo , Carla Maria Ramos Germano , Carlos Guilherme Gaelzer Porciúncula

DOI: 10.1590/1807-57622016.0211

关键词:

摘要: Este ensaio teorico reflete sobre a qualificacao e o provimento de medicos no contexto da Politica Nacional Atencao Integral as Pessoas com Doencas Raras SUS. Para isso, apresentamos suas diretrizes, situamos discussao em torno duas estrategias integradas: fixacao geneticistas; capacitacao profissionais Primaria Saude relacao doencas geneticas aos defeitos congenitos. Finalmente, considerando Diretrizes Curriculares Nacionais do Curso Graduacao Medicina, uma proposta perfil competencia minimo Genetica, elaborada para instrumentalizar os cursos graduacao area Saude, particular Medicina. Assim, oferecemos um referencial apoiar delineamento programas educacao formacao contribuindo inclusao cuidado Genetica

参考文章(6)
Jon Emery, Susan Hayflick, The challenge of integrating genetic medicine into primary care BMJ. ,vol. 322, pp. 1027- 1030 ,(2001) , 10.1136/BMJ.322.7293.1027
Dafne Dain Gandelman Horovitz, Victor Evangelista de Faria Ferraz, Sulamis Dain, Antonia Paula Marques-de-Faria, Genetic services and testing in Brazil Journal of Community Genetics. ,vol. 4, pp. 355- 375 ,(2013) , 10.1007/S12687-012-0096-Y
Taiane Alves Vieira, Camila Giugliani, Larissa Pozzebon da Silva, Lavínia Schuler Faccini, Júlio César Loguercio Leite, Osvaldo Alfonso Pinto Artigalás, Maria Lúcia Medeiros Lenz, Maria Verónica Muñoz-Rojas, Roberto Giugliani, Inclusion of medical genetics in primary health care: report of a pilot project in Brazil. Journal of Community Genetics. ,vol. 4, pp. 137- 145 ,(2013) , 10.1007/S12687-012-0110-4
Cristophe Cordier, Debby Lambert, Marie-Antoinette Voelckel, Ulrika Hosterey-Ugander, Heather Skirton, A profile of the genetic counsellor and genetic nurse profession in European countries Journal of Community Genetics. ,vol. 3, pp. 19- 24 ,(2012) , 10.1007/S12687-011-0073-X
B. Starfield, Primary care and genetic services. Health care in evolution. European Journal of Public Health. ,vol. 12, pp. 51- 56 ,(2002) , 10.1093/EURPUB/12.1.51
HFF Gramasco, FH Baptista, MG Ribeiro, LRS de Avó, CMR Germano, DG Melo, Genetics in Primary Healthcare in Brazil: Potential Contribution of Mid-level Providers and Community Health Workers Journal of community medicine & health education. ,vol. 2016, pp. 1- 7 ,(2016) , 10.4172/2161-0711.1000406