Partnering with patients in the production of evidence

作者: Peter J Gill , Emma Cartwright

DOI: 10.1136/BMJEBM-2020-111339

关键词:

摘要: Partnership with patients and carers in the production implementation of evidence-based medicine (EBM) has long been highlighted as important necessary.1 As outlined by David Sackett, practice EBM calls for integration external evidence clinical expertise ‘patient's state, predicament preferences’ to determine if whether it should be applied.2 This led development guidelines principles around involving conduct, delivery, dissemination healthcare.3 4 The past decade witnessed a rapid increase patient partnership healthcare delivery.5 The 2017 Manifesto identified one key ways develop more trustworthy evidence.6 Patients are increasingly having role ensuring that new research is relevant, accessible applicable end users.7 Despite this increased awareness, there still several challenges support both researchers partner EBM. EBMLive conferences (https://ebmlive.org/) have provided platform discuss some these issues bringing patients, clinicians together tackle uncertainty how, when where involve In article, we describe perceived within researcher partnerships highlight areas future will explore. We also outline strategies on how can better with, support, involved EBM. ### Why patients? Patient morally necessary individuals who most directly affected generated. ‘Nothing about us without us’ phrase used many groups calling involvement decisions. …

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