Assessment of Needs in Children Suffering From Refractory Non-neurogenic Urinary and Fecal Incontinence and Their Caregivers' Needs and Attitudes Toward Alternative Therapies (SNM, TENS).

摘要: Background: Non-neurogenic urinary and fecal incontinence (UI, FI) affects approximately 6% of North American children with 1% cases becoming refractory (nonresponsive to standard therapies). Incontinence has major potential long-term physiological psychological implications for patients their families. While Sacral Neuromodulation (SNM) Transcutaneous Nerve Stimulation (TENS) are alternative therapies available the treatment UI/FI, these not approved use in Canada. The present study assessed participants' perception current treatments, burden, attitudes toward novel a single pediatric institution. Methods: Multiple validated questionnaires including Dysfunctional Voiding Scoring System (DVSS), Bristol Stool Chart (BSC), Pediatric measurement (PinQ), Time-Driven Activity Based Costing were used perform needs assessment non-neurogenic incontinence, determine patients' caregivers' therapies. Results: 75% 89% caregivers reported moderate severe impact on QoL diminished social interactions among primary concerns. Caregivers frustrated treatments open trying (SNM TENS), which, at least case SNM, seems be less expensive, possibly burdensome more effective than surgical options. Conclusion: UI/FI large improve should further investigated as substitute surgery.