Perceived Health in Patients with Primary Immune Deficiency

摘要: Perceived health (PH) is a subjective measure of global individuals. While many studies have evaluated outcomes in patients with primary immune deficiency (PID), published literature evaluating PH among PID sparse. We the results largest self-reported survey to determine factors that may contribute differences PH. Data from National Survey Patients Primary Immune Deficiency Diseases conducted by Foundation was studied. Multivariate logistic regression employed for data analysis. Thirty percent perceived their status as excellent or very good (EVG), 31 % (G), and 39 % fair, poor (P). Older were less likely EVG-PH compared G-PH. Ones college degrees more P-PH G-PH, EVG-PH. who acutely ill hospitalized past 12 months, ones limited activity, chronic diseases, “on demand” access specialty care on regular IVIG had higher OR having opposed cared mostly an immunologist Our emphasize importance clinical practice. suggest recognizing drive important development disease prevention promotion programs, delivery appropriate social services individuals PID.