The burden of proof: The process of involving young people in research.

摘要: Patient and public involvement in research includes non-academics working with researchers, on activities from consultative tasks, to joint working, user-led initiatives. Health social care funding bodies require projects. A current debate focuses a perceived lack of empirical "proof" demonstrate the impact upon quality research. It is also argued that relationships between researchers those becoming involved need be understood more fully. These areas are beginning reported but there few studies young people health This study describes experiences adult academics people, together large-scale, UK programme. Using qualitative interview focus group methods, aim was explore participants' perceptions about process outcomes their work together. The importance cyclical, dynamic flexible approaches suggested. Enablers include having clear mechanisms for negotiation facilitation, stakeholders vision "the art possible," centrally, opportunities face-to-face working. What needed continuing discourse challenges benefits as distinct younger children adults, understanding value this work, without somehow "prove" themselves. Involvement relies complex processes. supports view an improved how key processes enabled, well what achieves, now needed.