Patients' and professionals' opinions of services for people at an increased risk of colorectal cancer: an exploratory qualitative study

作者: Tamar Stermer , Shirley Hodgson , Fred Kavalier , Sally Watts , Roger Jones

DOI: 10.1023/B:FAME.0000026813.73472.9D

关键词:

摘要: Objectives: To explore the views and opinions of patients with a family history colorectal cancer, primary secondary care health professionals, on how to improve current services for individuals cancer. Design: Focus group interview study. Setting: Primary centres in south east London, UK. Participants: A total 53 people participated this qualitative study: 18 cancer were interviewed three focus groups 35 professionals either or individually. Visual analysis transcribed interviews was used identify key themes which emerged. Main outcome measures: Interviewees' needs, ways them. Results: Several areas concern identified. The role needs be clarified. Education information about should provided caregivers better support is required those undergoing screening surveillance. Methods ensure effective meaningful risk communication are inadequate require further exploration. Standardisation consistency advice treatment. Conclusion: These revealed substantial shortfalls provision at increased genetic Current systems assessment risk, delivery advice, surveillance inconsistent sometimes maybe inadequate. physicians service requires clarification. Significant opportunities exist development new, more appropriate models provide standards care.

参考文章(25)
T Kennedy, R Jones, The early detection of colorectal cancer in primary care. British Journal of General Practice. ,vol. 49, pp. 956- 958 ,(1999)
Jon Emery, Susan Hayflick, The challenge of integrating genetic medicine into primary care BMJ. ,vol. 322, pp. 1027- 1030 ,(2001) , 10.1136/BMJ.322.7293.1027
Paul C. Schroy, Adam F. Barrison, Bruce S. Ling, Sheila Wilson, Adam C. Geller, Family history and colorectal cancer screening: a survey of physician knowledge and practice patterns The American Journal of Gastroenterology. ,vol. 97, pp. 1031- 1036 ,(2002) , 10.1111/J.1572-0241.2002.05624.X
Mirjam A. G. Sprangers, Adrienne Te Velde, Neil K. Aaronson, Babs G. Taal, Quality of life following surgery for colorectal cancer: A literature review Psycho-oncology. ,vol. 2, pp. 247- 259 ,(1993) , 10.1002/PON.2960020405
J. Emery, R. Walton, M. Murphy, J. Austoker, P. Yudkin, C. Chapman, A. Coulson, D. Glasspool, J. Fox, Computer support for interpreting family histories of breast and ovarian cancer in primary care: comparative study with simulated cases BMJ. ,vol. 321, pp. 28- 32 ,(2000) , 10.1136/BMJ.321.7252.28
M. A. G. Sprangers, B. G. Taal, N. K. Aaronson, A. te Velde, Quality of life in colorectal cancer. Stoma vs. nonstoma patients Diseases of The Colon & Rectum. ,vol. 38, pp. 361- 369 ,(1995) , 10.1007/BF02054222
Eileen Lovett, Family studies in cancer of the colon and rectum British Journal of Surgery. ,vol. 63, pp. 13- 18 ,(1976) , 10.1002/BJS.1800630103
J Burn, P Chapman, J Delhanty, C Wood, F Lalloo, M B Cachon-Gonzalez, K Tsioupra, W Church, M Rhodes, A Gunn, The UK Northern region genetic register for familial adenomatous polyposis coli: use of age of onset, congenital hypertrophy of the retinal pigment epithelium, and DNA markers in risk calculations. Journal of Medical Genetics. ,vol. 28, pp. 289- 296 ,(1991) , 10.1136/JMG.28.5.289