Adoption and the communication of genetic risk: experiences in Huntington disease.

摘要: Bombard Y, Semaka A, Hayden MR. Adoption and the communication of genetic risk: experiences in Huntington disease. Adoption can present significant challenges when seeking or communicating risk information. agencies use information to determine eligibility prospective adoptive parents establish a child's suitability for adoption. We describe implications disease (HD) context A secondary analysis was employed using data collected from cross-sectional survey (n = 233) two qualitative studies on psychosocial effects predictive testing HD. demonstrate several ethical practical search adoptees their birth relatives. also found that concern adoption discrimination reported by 13.7% respondents 32). Concerns were higher among tested than those who had not been 29 vs n 3, p 0.010). However, more concerned about being discriminated based family history (FHx) test results (GTR) (concern FHx: 18 GTR: 1 both: =10). These findings contribute limited empirical literature offering evidence with reference