Measuring Health-Related Quality of Life in Children and Adolescents : Implications for Research and Practice

摘要: Contents: Preface. Part I: Historical Evolution and Conceptual Foundations of Pediatric Health-Related Quality Life Assessment. R. Levi, D. Drotar, Critical Issues Needs in Assessment Children Adolescents With Chronic Health Conditions. E.L. Schor, Children's the Life. J.W. Finkelstein, Methods, Models, Measures for Adolescents. J.D. Lantos, Some Moral Political Pitfalls Measuring II: Population-Based Applications R.M. Kaplan, Implications Public Policy Adolescent Health. B. Starfield, A. Riley, Profiling Illness J.M. Landgraf, L. Abetz, Influences Sociodemographic Characteristics on Parental Reports Physical Psychosocial Well-Being: Early Experiences Child Questionnaire. III: Measures, Specific A.M. Jacobson, K. Fried, Developing Assessments Children: Illustrations From Studies Insulin-Dependent Diabetes Mellitus. S. Saigal, P. Rosenbaum, Hoult, W. Furlong, Feeny, E. Burrows, Stoskopf, Methodological Assessing Adolescents: Illustration Extremely Low Birthweight Survivors. E.F. Juniper, P.J. Ferrie, L.E. Griffith, G.H. Guyatt, Why Not Just Ask Kids? Asthma. S.R. Boggs, Durning, The Oncology Scale: Development Validation a Disease-Specific Measure. D.I. Czyzewski, L.K. Bartholomew, Outcomes Cystic Fibrosis. S.L. Gortmaker, W.R. Lenderking, C. Clark, Lee, M.G. Fowler, Oleske, ACTG 219 Team, Use Questionnaire AIDS Clinical Trials: Reliability Validity General Children. L.S. Walker, C.A. Heflinger, Predictors Outcome Abdominal Pain Patients: Findings at Initial 5-Year Follow-Up. IV: HRQOL Growth Endocrine Problems. I. Wiklund, Erling, Albertsson-Wikland, Review Measurement Stabler, N.C. Frank, Psychiatric Status Individuals Treated GH Childhood. D.E. Sandberg, Michael, Stresses Related to Short Stature: Does Their Presence Imply Psychological Dysfunction? D.H. Skuse, Cave, O'Herlihy, South, Turner Syndrome: Parent, Teacher, Individual Perspectives. V: Summary Recommendations Research T.M. Palermo, K.A. Riekert, J.R. Robinson, N. Walders, Concerning