Examining the quality of name code record linkage: What is the impact on death and cancer risk estimates? A validation study
作者： Alexander Swart , Nicola S. Meagher , Marina T. van Leeuwen , Kun Zhao , Andrew Grulich
关键词:
摘要: Objective: To examine the validity and impact of record linkage using name code compared to full records. Methods: A registry 45,419 opioid substitution clients (1985–2007) was linked with national population-based death cancer registries registrant's name, date birth, sex, state, postcode death. Records were then first two letters given surname (2×2 code). Sensitivity specificity computed regression analysis used identify factors related accuracy. Standardised mortality ratios (SMR) standardised incidence (SIR) estimated. Results: The sensitivity 65.31% 99.91% for records 76.81% 99.89% records. Registrants' age sex accuracy associated risk false linkages. Death risks (SMR 6.98, 95%CI 6.77–7.19; SIR 1.16, 1.08–1.24) significantly under-estimated 4.39, 4.23–4.56; 0.92, 0.85–0.99). Conclusion: Record 2×2 has low but high specificity, resulting in conservative estimates risk. This may translate meaningful differences outcomes.
cancercouncil.com.au参考文章(20)
Eric A. Engels, Ruth M. Pfeiffer, Joseph F. Fraumeni, Bertram L. Kasiske, Ajay K. Israni, Jon J. Snyder, Robert A. Wolfe, Nathan P. Goodrich, A. Rana Bayakly, Christina A. Clarke, Glenn Copeland, Jack L. Finch, Mary Lou Fleissner, Marc T. Goodman, Amy Kahn, Lori Koch, Charles F. Lynch, Margaret M. Madeleine, Karen Pawlish, Chandrika Rao, Melanie A. Williams, David Castenson, Michael Curry, Ruth Parsons, Gregory Fant, Monica Lin, Spectrum of cancer risk among US solid organ transplant recipients. JAMA. ,vol. 306, pp. 1891- 1901 ,(2011) , 10.1001/JAMA.2011.1592
Scott C Bell, Peter T P Bye, Peter J Cooper, A James Martin, Karen O McKay, Phillip J Robinson, Gerard F Ryan, Geoff C Sims, Cystic fibrosis in Australia, 2009: results from a data registry. The Medical Journal of Australia. ,vol. 195, pp. 396- 400 ,(2011) , 10.5694/MJA11.10719
Sarah Larney, Lucy Burns, Evaluating health outcomes of criminal justice populations using record linkage: the importance of aliases Evaluation Review. ,vol. 35, pp. 118- 128 ,(2011) , 10.1177/0193841X11401695
Andrew E Grulich, Yueming Li, Ann McDonald, Patricia KL Correll, Matthew G Law, John M Kaldor, None, Rates of non-AIDS-defining cancers in people with HIV infection before and after AIDS diagnosis. AIDS. ,vol. 16, pp. 1155- 1161 ,(2002) , 10.1097/00002030-200205240-00009
Juhua Luo, Weimin Ye, Kazem Zendehdel, Johanna Adami, Hans-Olov Adami, Paolo Boffetta, Olof Nyrén, Oral use of Swedish moist snuff (snus) and risk for cancer of the mouth, lung, and pancreas in male construction workers: a retrospective cohort study The Lancet. ,vol. 369, pp. 2015- 2020 ,(2007) , 10.1016/S0140-6736(07)60678-3
Marina T van Leeuwen, Claire M Vajdic, Melanie G Middleton, Ann M McDonald, Matthew Law, John M Kaldor, Andrew E Grulich, None, Continuing declines in some but not all HIV-associated cancers in Australia after widespread use of antiretroviral therapy AIDS. ,vol. 23, pp. 2183- 2190 ,(2009) , 10.1097/QAD.0B013E328331D384
Klaus Rostgaard, Methods for stratification of person-time and events - a prerequisite for Poisson regression and SIR estimation. Epidemiologic Perspectives & Innovations. ,vol. 5, pp. 7- 7 ,(2008) , 10.1186/1742-5573-5-7
Azar Kariminia, Tony Butler, Simon Corben, John Kaldor, Michael Levy, Matthew Law, Mortality among prisoners: how accurate is the Australian National Death Index? Australian and New Zealand Journal of Public Health. ,vol. 29, pp. 572- 575 ,(2005) , 10.1111/J.1467-842X.2005.TB00253.X
Janaki Amin, Matthew G Law, Mark Bartlett, John M Kaldor, Gregory J Dore, Causes of death after diagnosis of hepatitis B or hepatitis C infection: a large community-based linkage study The Lancet. ,vol. 368, pp. 938- 945 ,(2006) , 10.1016/S0140-6736(06)69374-4
Rosemary Karmel, Phil Anderson, Diane Gibson, Ann Peut, Stephen Duckett, Yvonne Wells, Empirical aspects of record linkage across multiple data sets using statistical linkage keys: the experience of the PIAC cohort study. BMC Health Services Research. ,vol. 10, pp. 41- 41 ,(2010) , 10.1186/1472-6963-10-41