Development and evaluation of a patient empowerment video to promote hydroxyurea adoption in sickle cell disease.

摘要: Background For the last decade, compelling evidence on hydroxyurea (HU) efficacy in certain adult patients with sickle cell disease (SCD) has supported recommendations for use of this drug to decrease morbidity and medical costs. Despite these benefits, HU therapy is underused meeting treatment criteria. The purpose study was develop evaluate an educational video empower their families initiate a conversation physicians benefits risks HU, encouraging shared decision-making process. Methods Patients SCD prominence community were selected participate based communication skills. They encouraged answer interview questions camera language that could be easily understood by all patients. Two focus groups participated development process verifying messages clear easy understand. A pre- postdesign survey performed assess patient acceptability utility video. Results 15-minute produced modified from input groups. Impact refined evaluated survey. expressed strong desire after viewing learn about potential HU. Furthermore, useful heightening intent ask health care providers therapy.