摘要: A lot has been written about the opportunities of Internet for medicine, and lately, also disease research specifically. Although it remains to be seen how significant sustainable a change this will result in, some recent developments are highly relevant area genetic research. User-friendly, low-threshold web-based tools do not only provide information patients other users, but they supply user-generated data that can utilized by both medical practice Many these have below radar mainstream academic so far. Issues related quality standardization, as well protection privacy, still need addressed. Dismissing platforms fads tiny privileged minority risks missing opportunity our say in debates.
sci-hub.se 参考文章(8)
Philip M. Napoli, Jonathan A. Obar, Mobile Leapfrogging and Digital Divide Policy: Assessing the Limitations of Mobile Internet Access Social Science Research Network. ,(2013) , 10.2139/SSRN.2263800
Michael A. Nielsen, Reinventing Discovery: The New Era of Networked Science ,(2011)
Christian Fuchs, Internet and Surveillance Internet and Surveillance: The Challenges of Web 2.0 and Social Media 1st. pp. 352- 352 ,(2011) , 10.4324/9780203806432
Jorge G. Ruiz, Michael J. Mintzer, Rosanne M. Leipzig, The impact of E-learning in medical education. Academic Medicine. ,vol. 81, pp. 207- 212 ,(2006) , 10.1097/00001888-200603000-00002
Barbara Prainsack, Gabriele Werner-Felmayer, Silke Schicktanz, Genetics as social practice Ashgate Publishing Ltd. ,(2014)
Matthew Rimmer, 23andMe Inc.: Patent Law and Lifestyle Genetics The Journal of Law and Information Science. ,vol. 22, pp. 132- ,(2012)
Barbara Prainsack, Genetics as Social Practice Routledge. ,(None) , 10.4324/9781315584300