ESOS: a European study on the orthopaedic status of patients with haemophilia and inhibitors.

摘要: Published studies highlight the paucity of data relating to orthopaedic health and quality life in haemophilia patients with inhibitors. A European Study on Orthopaedic Status Patients Haemophilia Inhibitors (ESOS) has been set up address this lack data. This cross-sectional retrospective study aims enrol 400 from 50 sites nine countries. The primary outcome measure is burden complications severe that will be generated should demonstrate high level arthropathy inhibitors show need focus improving rare, but particularly vulnerable, patient population.