Distinction of quality of life, health related quality of life, and health status in children referred for rheumatologic care.

摘要: Objective. Current health status measures [sometimes called quality of life (QOL) measures] are based on the values their designers. QOL, though, reflects idiosyncratic each individual. We investigated whether children referred for rheumatologic care differentiate between concepts related (HRQOL), overall QOL. and status. Methods. One hundred twenty-two consecutive seen at a pediatric rheumatology referral clinic completed new global self-report scale (Quality My Life), functional impairment (Childhood Health Assessment Questionnaire), disease severity visual analog scale. Sixty were followup assessment. Results. HRQOL was somewhat lower than QOL (median 6.6 vs 8.6 out 10, respectively) in this sample patients. Out subjects did status, as measured by severity, accounted only moderate amount variability (R 2 = 0.25, p ≤ 0.0001). disability even less 0.047, 0.013). Similarly. 0.31, 0.0001 ). Conclusion. The goal most professionals is to improve patients' appears be broad construct affected moderately health. HRQOL, all provide independent information. All 3 should considered use research studies. reflect own values, therefore may offer important information clinicians addition