Caregivers' attitudes toward their family members' participation in Alzheimer disease research: implications for recruitment and retention.

摘要: Current levels of participation in Alzheimer disease (AD) research are inadequate, particularly among nonwhites. This study was conducted to examine caregivers' attitudes toward their family members' AD research. Six focus group interviews were with 38 white and 12 African-American caregivers participants enrolled clinical projects. Both families participated help care recipients future generations, receive support from the staff, obtain feedback about patient status results. Among caregivers, primary barriers included potential for no direct benefit, problems procedures tests involved, lack time resources, difficulty accepting diagnosis. general skepticism process firmly established medical treatment seeking that serve as disincentives participation. To maximize perceived benefits participation, should have access regular personal contact information health changes recipient, short-term long-term results studies which they participants. In addition, researchers be sensitive concerns may African Americans.