Development and testing of an instrument to assess the Quality of Life of Children with Haemophilia in Europe (Haemo-QoL)
作者： S Von Mackensen , M Bullinger , Haemo‐QoL Group , None
DOI: 10.1111/J.1355-0691.2004.00875.X
关键词:
摘要: In spite of an increased interest in the assessment quality life (QoL) children, so far no instrument for children with haemophilia is available. Because low prevalence condition, such should also be cross-culturally applicable. study presented, a (the Haemo-QoL questionnaire) was developed and tested six countries (France, Germany, Italy, Netherlands, Spain United Kingdom) psychometric properties 339 their parents. The self-reported questionnaire age ranges 4-7 (I: 21 items), 8-12 (II: 64 13-16 years (III: 77 items) as well parent rating containing 9-11 subscales (depending on age-group versions). Psychometric testing involved examination reliability validity. three versions had acceptable internal consistency retest values, possessing sufficient discriminant convergent However, young when compared to older these indicators were less satisfactory. full version now available groups parents ready use clinical research.
haemoqol.de
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