作者: Nico Bouman
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摘要: textabstractThe confrontation with the birth of a child congenital anomaly is enormously stressful for parents. Expectations healthy baby and joyfhlnursery time are often not met. These parents will have multiple questions concents which can be centered around past, present, and the future. Looking back, they may ask themselves: What has gone wrong that our a congenital anomaly? we done or this happened? In most cases these questions crumot answered, because no specific cause identified. This often leaves parents much uncertainty, will easily resolved. At same time, they to accept situation as it is, face responsibility care for child. This presents actual task caring attaching their newbom child. However, these children must hospitalized, in neonatal pediatric surgery intensive unit during considerable time, aggravates difficulties parents. The itself provoke anxiety parents. They find themselves completely unfamiliar do know rules what expected ofthem. see their surrounded by high-tech instruments on ward many busy doctors nurses. The undergoing more less invasive painful procedures, be very difficult see tlus happen, wlule very few tools comfort help the child. The medical major congelutal abdominal critical for shorter Of longer period. For provokes CllOlTIlOUS anxieties. All consequence difficulty attach until medical situation been stabilized. If survived first months, concerns about future arise. Parents raise become their child. Will grow up normal child? handicapped? ways life of their affected treatment? difficult to answer particular child, answers based group findings unsatisfying for parents take away uncertainties.