From the principles of genomic data sharing to the practices of data access committees.

作者: Mahsa Shabani , Bartha Maria Knoppers , Pascal Borry

DOI: 10.15252/EMMM.201405002

关键词:

摘要: Sharing genomic research data through controlled-access databases has increased in recent years. Policymakers and funding organizations endorse sharing order to optimize the use of public funds increase statistical power databases. Well-established access arrangements committees (DACs)—responsible for reviewing managing requests databases—are therefore central implementing policies principles sharing. This article aims investigate functionality DACs perspective existing practices.

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