In the shadow of illness: Parents and siblings of the chronically ill child.

摘要: "This book powerfully illuminates the everyday experience of families living with a chronicallyill child."--Patricia A. Marshall, Associate Director Medical Humanities Program at Loyola University Chicago, Strich School MedicineWhat is it like to live child who has chronic, life-threatening disease? What impact does illness have on well siblings in family? Myra Bluebond-Langner suggests that understanding lies not identifying deficiencies lives those affected, but appreciating how family members carry their face disease's intrusion.The Private Worlds Dying Children, Bluebond-Langner's previous book, now considered classic field, explored world terminally ill children. In her new she turns attention shadow chronic illness: parents and children cystic fibrosis. Through series narrative portraits, draws us into daily nine different points natural history illness--from diagnosis through terminal phase. these as talk about experiences own words, we see parents, siblings, themselves struggle, ways, contain intrusion disease lives.Bluebond-Langner looks adjust priorities idea what constitutes normal life, they try balance needs other while caring for child, future. This context helps understand view howthey relate sibling parents. Since issues raised are unique fibrosis common illnesses, this will be interest all study, care for, or seriously ill.