Knowledge, attitudes, and behaviors of youths in the US hemophilia population: results of a national survey.

摘要: Objectives. The National Hemophilia Foundation and the Centers for Disease Control Prevention conducted a national survey focusing on knowledge about, attitudes toward, behaviors associated with key prevention activities among youths hemophilia used data gathered to design health promotion campaign.Methods. A national, random sample of 459 patients was drawn from 20 treatment centers 8 associations; 110 (24%) respondents were young people. telephone questionnaire measure knowledge, behaviors, barriers prevention.Results. Thirty-six percent youth believed that joint disease cannot be prevented; 60% managed by avoiding physical activity. Only 31% treated bleeding episodes within 1 hour. Although hepatitis clear threat this hemophilic cohort, 78% did now know transmission routes C, 67% not B.Conclusions. Young peopl...