Breast cancer survivors' experiences of dealing with information during and after adjuvant treatment: A qualitative study.

作者: Siv Tove Aunan , Gry Ciekals Wallgren , Britt Sætre Hansen

DOI: 10.1111/JOCN.14700

关键词:

摘要: Aims and objectives To describe breast cancer (BC) survivors' experiences of participating in a 2-day educational programme (Breast Cancer School, BCS) their critical reflection on information received during after adjuvant treatment. The following research questions guided the study. How do BC survivors experience participation an programme? trajectory treatment? Background is most prevalent among women Norway. have substantial need for about disease, treatment recovery. During past few years, Norway has changed from inpatient- to outpatient-based Oncology nurses oncologists are obliged provide patients families with information, which necessitated reorganisation procedures providing information. New arenas such as Breast School (BCS) offer opportunity learn experts fellow patients. Design Qualitative, descriptive design. Methods Focus groups 20 having participated BCS were used enable reflection. COREQ checklist was followed ensure rigour Results Two themes emerged qualitative analysis: Balancing between fear Moving safe structure lonely We identified differences diversity, uniqueness Continuity expert knowledge provided by primary oncology nurse highlighted important. Conclusion study reveals tailored each survivor's unique needs. expressed both takes systematic individual approach dialog meet transition recovery intensive perceived unsafe challenging. patients' must be continuously valued improve programmes, care play important part chain continuity. Relevance clinical practice This highlights importance including design evaluation programmes. provision supportive continuity through crucial.

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