Quality-of-Life Impairment in Neurofibromatosis Type 1

作者: Jean Revuz , Jacques Zeller , Pierre Wolkenstein , Emmanuel Ecosse

DOI:

关键词:

摘要: Background: Neurofibromatosis type 1 affects quality of life (QoL) through association with severe complications, impact on cosmetic features, and uncertainty the effects disorder. Objective: To evaluate severity visibility neurofibromatosis QoL. Design: Monocenter, cross-sectional study. Setting: One French academic dermatological neurofibromatoses clinic. Patients: A total 128 adult patients 1.

参考文章(19)
Rosalie E. Ferner, David H. Gutmann, Neurofibromatosis type 1 (NF1): diagnosis and management Handbook of Clinical Neurology. ,vol. 115, pp. 939- 955 ,(2013) , 10.1016/B978-0-444-52902-2.00053-9
Mary-Margaret Chren, Understanding research about quality of life and other health outcomes. Journal of Cutaneous Medicine and Surgery. ,vol. 3, pp. 312- 316 ,(1999) , 10.1177/120347549900300608
Samuelsson B, Riccardi Vm, Neurofibromatosis in Gothenburg, Sweden. III. Psychiatric and social aspects. Neurofibromatosis. ,vol. 2, pp. 84- 106 ,(1989)
Mauger D, Zeller J, Wolkenstein P, Revuz J, Retentissement psychologique de la neurofibromatose de type 1 : analyse d'entretiens avec 12 malades en vue d'une évaluation de la qualité de vie Annales De Dermatologie Et De Venereologie. ,vol. 126, pp. 619- 620 ,(1999)
Alain Leplège, Emmanuel Ecosse, Angela Verdier, Thomas V. Perneger, The French SF-36 Health Survey: Translation, Cultural Adaptation and Preliminary Psychometric Evaluation Journal of Clinical Epidemiology. ,vol. 51, pp. 1013- 1023 ,(1998) , 10.1016/S0895-4356(98)00093-6
P. Wolkenstein, I. Durand-Zaleski, J.C. Moreno, J. Zeller, F. Hemery, J. Revuz, Cost evaluation of the medical management of neurofibromatosis 1: a prospective study on 201 patients. British Journal of Dermatology. ,vol. 142, pp. 1166- 1170 ,(2000) , 10.1046/J.1365-2133.2000.03543.X
Rebecca Jane Lasek, Mary-Margaret Chren, Acne Vulgaris and the Quality of Life of Adult Dermatology Patients Archives of Dermatology. ,vol. 134, pp. 454- 458 ,(1998) , 10.1001/ARCHDERM.134.4.454
Mary-Margaret Chren, Rebecca J. Lasek, Linda M. Quinn, Eliot N. Mostow, Stephen J. Zyzanski, Skindex, a Quality-of-Life Measure for Patients with Skin Disease: Reliability, Validity, and Responsiveness Journal of Investigative Dermatology. ,vol. 107, pp. 707- 713 ,(1996) , 10.1111/1523-1747.EP12365600
Mary-Margaret Chren, Rebecca J Lasek, Susan A Flocke, Stephen J Zyzanski, Improved Discriminative and Evaluative Capability of a Refined Version of Skindex, a Quality-of-Life Instrument for Patients With Skin Diseases Archives of Dermatology. ,vol. 133, pp. 1433- 1440 ,(1997) , 10.1001/ARCHDERM.1997.03890470111018