Recommendations for patient engagement in guideline development panels: A qualitative focus group study of guideline-naïve patients

摘要: Background Patient and consumer engagement in clinical practice guideline development is internationally advocated, but limited research explores mechanisms for successful engagement. Objective To investigate the perspectives of potential patient/consumer representatives on topics pertaining to including group composition barriers facilitators Setting participants Participants were guideline-naive volunteers programs designed link community members academic with diverse ages, gender, race, degrees experience interacting health care professionals. Methods Three focus groups one key informant interview conducted analyzed using a qualitative descriptive approach. Results recommended small, engaging multiple stakeholders no prior relationships each other or professional panel members. No consensus was achieved ideal balance stakeholders. Pre-meeting reading/training an identified contact person described as keys early engagement; skilled facilitators, understandable speech language, established soliciting patient opinions suggested enhance at meetings. Conclusions Most suggestions effective guidelines require forethought planning little additional expense, making these strategies easily accessible developers desiring achieve more meaningful