A literature review into Parents' experiences of raising a child with a disability, and research exploring mothers' experiences of receiving a diagnosis of Monosomy 1P36 deletion syndrome for their child

摘要: This thesis comprises a qualitative meta-synthesis of research into parents’ experiences raising child with disability and investigation mothers’ receiving diagnosis Monosomy 1p36 Deletion Syndrome for their child. A six papers meeting inclusion quality criteria is presented within this review. Overarching themes derived from the included two risk factors: Experiences Challenges; protective Strategies Coping Support. These are in visual representation parent’s journey disability. Using Grounded Theory techniques data were collected through semi-structured interviews eight mothers who had received Syndrome. An overarching theme facing uncertainty / reducing emerged data, was connected five themes: gaining information, being supported not supported, powerless, jumping to future living here-and-now, making difference difference. findings highlight need professionals be appropriately skilled deliever whilst drawing on previous delivering Down’s Syndrome, cancer Dementia.