Caregiving Experiences of Latino Families With Children With Autism Spectrum Disorder.

作者: Erna Imperatore Blanche , Jesus Diaz , Tanya Barretto , Sharon A. Cermak

DOI: 10.5014/AJOT.2015.017848

关键词:

摘要: Objective Prior research has documented caregiving difficulties in families of children with autism spectrum disorder (ASD). However, Latino may encounter unique challenges. The purpose this study was to understand the experiences ASD, including daily activities, coping strategies, and service utilization. Method Fifteen parents ASD were interviewed. interviews transcribed for analysis identify themes population. Results many similar issues as non-Latino but also that affect Four identified: dealing diagnosis, stigma isolation from family community, understanding role mothers changing routines, utilizing services. Conclusion To meet needs families, services need be provided culturally sensitive context address children's within units.

参考文章(46)
Michael Quinn Patton, Qualitative research and evaluation methods ,(1980)
D. Bright, S. Salaff, Searching for acceptance Independent Energy; (United States). ,(1994)
Margaret Anzul, Margot Ely, Ann McCormack-Steinmetz, Diane Garner, Teri Freidman, Doing Qualitative Research: Circles Within Circles ,(1991)
Leah I. Stein, Amanda C. Foran, Sharon Cermak, Occupational Patterns of Parents of Children with Autism Spectrum Disorder: Revisiting Matuska and Christiansen's Model of Lifestyle Balance Journal of Occupational Science. ,vol. 18, pp. 115- 130 ,(2011) , 10.1080/14427591.2011.575762
Kylie Marquenie, Sylvia Rodger, Kim Mangohig, Anne Cronin, Dinnertime and bedtime routines and rituals in families with a young child with an autism spectrum disorder. Australian Occupational Therapy Journal. ,vol. 58, pp. 145- 154 ,(2011) , 10.1111/J.1440-1630.2010.00896.X
Egon G. Guba, Criteria for assessing the trustworthiness of naturalistic inquiries Educational Communication and Technology anc AV Communication Review Washington, D.C. ,vol. 29, pp. 75- 91 ,(1981) , 10.1007/BF02766777
Matthew B. Miles, A. Michael Huberman, Data management and analysis methods. Sage Publications, Inc. ,(1994)
Gregory S. Liptak, Lauren B. Benzoni, Daniel W. Mruzek, Karen W. Nolan, Melissa A. Thingvoll, Christine M. Wade, G Edgar Fryer, Disparities in Diagnosis and Access to Health Services for Children with Autism: Data from the National Survey of Children??s Health Journal of Developmental & Behavioral Pediatrics. ,vol. 29, pp. 152- 160 ,(2008) , 10.1097/DBP.0B013E318165C7A0
Matthew J. Altiere, Silvia von Kluge, Searching for acceptance: Challenges encountered while raising a child with autism Journal of Intellectual & Developmental Disability. ,vol. 34, pp. 142- 152 ,(2009) , 10.1080/13668250902845202