Allocation of Resources to Communication of Research Result Summaries: Biobank Participant Perspectives.

摘要: Researchers and policymakers recommend communicating summary research results to biobank participants when feasible. To date, however, there have been few explorations of participant preferences for dedicating resources this activity. Fifteen semi-structured interviews were conducted with a genetic medicine biobank. Participants interviewed by phone about their motivation participation, opinions the allocation results. De-identified transcripts used directed content analysis. Most participation was altruistic. All not only interested in receiving but also expressed clear preference allocating limited funds conducting additional research. The suggest that nuanced view returning results, asking opinion is valuable exercise. may benefit from transparency goals involving decisions return