The quality of life of carers of patients with severe lung disease

作者: Adrienne Brewin

DOI: 10.12968/BJON.2004.13.15.15529

关键词:

摘要: Severe lung disease is known to affect the lives of not only sufferer but also his/her family. This qualitative phenomenological study identified seven patients with severe and studied quality life their carers (five female, two male) who were fully employed, living in same house or nearby. In a semistructured interview, asked about looking after spouse relative, whether they had support effect caring on health finances. The findings showed carers' be severely restricted, all carrying heavy emotional burden frustration, depression isolation: part-time jobs important both financially reduce isolation. Family was vital coping, few received professional help. All affected by reduction income, claiming allowances confusing; unpredictability complicated much-needed recreation holidays. Findings similar previously published data.

参考文章(30)
Tamilyn Bakas, Jayne E. Parsons, Rebecca R. Lewis, Caregiving Tasks Among Family Caregivers of Patients With Lung Cancer Oncology Nursing Forum. ,vol. 28, pp. 847- 854 ,(2001)
Julie Skilbeck, Laurie Mott, Diane Smith, Hilary Page, David Clark, Nursing care for people dying from chronic obstructive airways disease. International Journal of Palliative Nursing. ,vol. 3, pp. 100- 106 ,(1997) , 10.12968/IJPN.1997.3.2.100
Carol Thomas, Sara M Morris, Juliet C Harman, Companions through cancer : the care given by informal carers in cancer contexts Social Science & Medicine. ,vol. 54, pp. 529- 544 ,(2002) , 10.1016/S0277-9536(01)00048-X
Elaine Argyle, Poverty, Disability and the Role of Older Carers Disability & Society. ,vol. 16, pp. 585- 595 ,(2001) , 10.1080/09687590120059559
Kathy Charmaz, Loss of self: a fundamental form of suffering in the chronically ill. Sociology of Health and Illness. ,vol. 5, pp. 168- 195 ,(1983) , 10.1111/1467-9566.EP10491512
Louise Lévesque, Sylvie Cossette, Caregiving tasks as predictors of mental health of wife caregivers of men with chronic obstructive pulmonary disease Research in Nursing & Health. ,vol. 16, pp. 251- 263 ,(1993) , 10.1002/NUR.4770160404
C Fletcher, R Peto, The natural history of chronic airflow obstruction. BMJ. ,vol. 1, pp. 1645- 1648 ,(1977) , 10.1136/BMJ.1.6077.1645
Joanne Lynn, E. Wesley Ely, Zhenshao Zhong, Kristin Landrum McNiff, Neal V. Dawson, Al Connors, Norman A. Desbiens, Michael Claessens, Ellen P. McCarthy, Living and dying with chronic obstructive pulmonary disease. Journal of the American Geriatrics Society. ,vol. 48, pp. 91- 100 ,(2000) , 10.1111/J.1532-5415.2000.TB03147.X
Dorothy L. Sexton, Barbara Hazard Munro, Impact of a husband's chronic illness (COPD) on the spouse's life Research in Nursing & Health. ,vol. 8, pp. 83- 90 ,(1985) , 10.1002/NUR.4770080115