Safety, Awareness, and Familiarity regarding Epilepsy in Teenage Years (SAFETY): Understanding the adolescents' perspective about their disease

摘要: Abstract Objective The objective of this study was to evaluate the understanding adolescent patients regarding epilepsy. Methods SAFETY (Safety, Awareness, and Familiarity Epilepsy in Teenage Years) questionnaire (content validity index: 0.96, Flesch readability score: 66.6) administered 165 cognitively normal adolescents with epilepsy (85 females, mean age: 15.2 ± 1.6 years, range: 13–18 years). first part devised knowledge about antiepileptic medications (SAFETY-K: 7 questions). second queried lifestyle modifications safety (SAFETY-S: 10 Female participants answered 5 additional questions related reproductive health (RH questionnaire). Results correct response rate for composite 51.5%. average rates responses SAFETY-K SAFETY-S were 47.9% 53.9%, respectively. On univariate logistic regression analysis, factors which significant predictors included age (odds ratio: 1.8, C.I. = 1.3–2.4), race (Caucasian vs. African-American; odds 3.9, C.I. = 1.4–10.4), employment at least one parent a professional occupation 3.3, C.I. = 1.1–10.3). did not correlate duration epilepsy, extent seizure control, number medications, parental educational, or (un)employment status. RH amongst teenage girls 17.4%. Conclusions There is lack awareness its associated seen our institution. This especially true young adolescents, African-American patients, those whose parents are employed occupations. appear have limited respect contraception childbearing.