Data protection and privacy ethical guidelines

摘要: General disclaimer: this document examines the major concepts of data protection and privacy from the point of view of research ethics. It aims at raising awareness about these concepts in the scientific community and at assisting applicants while preparing to submit their project proposals. It does not seek to discuss these concepts in-depth but provides a general overview of their main parameters and some basic suggestions regarding their handling for the purposes of the European Commission's Ethical Review procedure. This document represents an effort to reflect on the experience gained during the operation of the Ethics Review mechanism and to provide some practical guidance, thus it will be regularly updated.