Ethics Oversight of Participant Led Medical Research: Problems and Prospects
Effy Vayena
medicine 2.0 conference
2013
How the General Data Protection Regulation changes the rules for scientific research: Study
Effy Vayena , Alessandro Blasimme , Julia Amann , Marcello Ienca
European Parliamentary Research Service (EPRS), Scientific Foresight Unit (STOA)
2019
The regulation of human germline genome modification in France
Effy Vayena , Alessandro Blasimme , Dorothée Caminiti
Human Germline Modification and the Right to Science: A Comparative Study of National Laws and Policies 380 -408
2020
Ethics guidelines in Citizen Science
Effy Vayena , Anna Jobin , James Scheibner
ETH Zurich, Competence Center Citizen Science Zurich
1
2020
Rechtliche Aspekte der personalisierten Medizin
Brigitte Tag , Isabel Baur , Effy Vayena , Isabel Klusman
Tag, Brigitte; Baur, Isabel (2016). Rechtliche Aspekte der personalisierten Medizin. In: Klusman, Isabel; Vayena, Effy. Personalisierte Medizin: Hoffnung oder leeres Versprechen? Zürich: vdf Hochschulverlag, 135-152. ( 54) 135 -152
2016
Revolutionizing Medical Data Sharing Using Advanced Privacy Enhancing Technologies: Technical, Legal and Ethical Synthesis
Effy Vayena , Jean Louis Raisaro , Jean-Pierre Hubaux , Juan Ramón Troncoso-Pastoriza
arXiv: Cryptography and Security
38
2020
Value from health data: European opportunity to catalyse progress in digital health.
Effy Vayena
The Lancet 397 ( 10275) 652 -653
2021
Covid-19 on Twitter: an analysis of risk communication with visuals
Effy Vayena , Julia Amann , Manuel Schneider , Joanna Sleigh
2021
Digital contact-tracing during the Covid-19 pandemic: An analysis of newspaper coverage in Germany, Austria, and Switzerland.
Effy Vayena , Julia Amann , Joanna Sleigh
PLOS ONE 16 ( 2)
73
2021
Ethical Issues with Using Internet of Things Devices in Citizen Science Research: A Scoping Review
Effy Vayena , Anna Jobin , James Scheibner
Frontiers in Environmental Science 9
1
2021
Public willingness to participate in personalized health research and biobanking: A large-scale Swiss survey.
Effy Vayena , Kelly E. Ormond , Kelly E. Ormond , Caroline Brall
PLOS ONE 16 ( 4)
2021
Qualitative analysis of visual risk communication on twitter during the Covid-19 pandemic.
Effy Vayena , Julia Amann , Manuel Schneider , Joanna Sleigh
BMC Public Health 21 ( 1) 810 -810
2021
Ethics review of big data research: What should stay and what should be reformed?
Bobbie Farsides , Effy Vayena , Jeff Kahn , Edward S. Dove
BMC Medical Ethics 22 ( 1) 51 -51
2021
The regulation of human germline genome modification in Switzerland
Alessandro Blasimme , Dorothée Caminiti , Effy Vayena
Human Germline Modification and the Right to Science: A Comparative Study of National Laws and Policies 409 -438
2020
Direct-to-Consumer Neurotechnology: What Is It and What Is It for?
Marcello Ienca , Effy Vayena
Ajob Neuroscience 10 ( 4) 149 -151
3
2019
The place of human rights and the common good in global health policy
John Tasioulas , Effy Vayena
Theoretical Medicine and Bioethics 37 ( 4) 365 -382
4
2016
Personal Genomics in Greece: An Overview of Available Direct-to-Consumer Genomic Services and the Relevant Legal Framework
Sotiria Kechagia , Yuan Mai , Takis Vidalis , George P. Patrinos
Public Health Genomics 17 299 -305
9
2014
The Ethics of AI in Biomedical Research, Patient Care and Public Health
Alessandro Blasimme , Effy Vayena
Oxford Handbook of Ethics of Artificial Intelligence 703 -718
1
2020
Navigating the Ethics of Big Data in Public Health
Effy Vayena , Lawrence Madoff
The Oxford Handbook of Public Health Ethics 354 -368
2019
On the responsible use of digital data to tackle the COVID-19 pandemic.
Marcello Ienca , Effy Vayena
Nature Medicine 26 ( 4) 463 -464
483
2020
Alessandro Blasimme Marcello Ienca John Tasioulas Barbara Prainsack Urs Gasser Marcel Salathé "Glenn Cohen" "I.G. Cohen" "I. Glenn Cohen" "IG Cohen" "Ivan Glenn Cohen" Jürg C. Streuli Jeffrey Kahn John Brownstein George P. Patrinos David N. Cooper Bastian Greshake Tzovaras Marc S. Williams Athanassios Vozikis Emmanuela Gakidou