Ethics and Big Data in health
Bartha Maria Knoppers , Adrian Mark Thorogood
Current Opinion in Systems Biology 4 53 -57
37
2017
Importance of Participant-Centricity and Trust for a Sustainable Medical Information Commons
Amy L. McGuire , Mary A. Majumder , Angela G. Villanueva , Jessica Bardill
Journal of Law Medicine & Ethics 47 ( 1) 12 -20
8
2019
Parental Access to Children's Raw Genomic Data in Canada: Legal Rights and Professional Responsibility.
Michael J Szego , M'an H Zawati , Bartha Maria Knoppers , Adrian M Thorogood
Frontiers in Genetics 12 535340
2021
Avoiding Liability and Other Legal Land Mines in the Evolving Genomics Landscape
Ellen Wright Clayton , Alex M Tritell , Adrian M Thorogood
Annual Review of Genomics and Human Genetics 24 333 -346
2
2023
Corrigendum: parental access to children's raw genomic data in Canada: legal rights and professional responsibility
Michael JS Beauvais , Adrian M Thorogood , Michael J Szego , Karine Sénécal
Frontiers in Genetics 12 725850 -725850
5
2021
3 1 Department of Pediatrics and Center for Biomedical Ethics and Society
Adrian M Thorogood
Vanderbilt University Medical Center, Nashville, Tennessee, USA 333 -346
41
McGill Journal of Law and Health~ Revue de droit et santé de McGill
DAVID PARRY , MICHAEL SHORTT , DANIEL MASLIYAH , MARC-JAMES TACHEJI
Protecting the Privacy of Canadians’ Health Information in the Cloud
Yann Joly , Edward S. Dove , Adrian Thorogood , Mark Phillips
Canadian Journal of Law and Technology 14 ( 1)
3
2016
Policy Brief: Points to Consider for Protecting Privacy in Cloud-Based Genomic Research
Yann Joly , Edward S. Dove , Adrian Thorogood , Mark Phillips
2015
Sharing Bioinformatic Data for Machine Learning: Maximizing Interoperability through License Selection.
Adrian Thorogood , Alexander Bernier
Bioinformatics 226 -232
2020
The Physician Who Knew Too Much: A Comment on Watters V. White
Ma'n H. Zawati , Adrian Thorogood
Health law journal 21 1
1
2014
Demonstrating trustworthiness when collecting and sharing genomic data: public views across 22 countries.
Barbara Prainsack , Jusaku Minari , Christine Critchley , Vigdis Stefànsdóttir
Genome Medicine 13 ( 1) 92 -92
2021
Consent insufficient for data release
Dianne Nicol , Lisa Eckstein , Heidi Beate Bentzen , Pascal Borry
Science 364 ( 6439) 445 -446
5
2019
APPLaUD: access for patients and participants to individual level uninterpreted genomic data.
Adrian Thorogood , Jason Bobe , Barbara Prainsack , Anna Middleton
Human Genomics 12 ( 1) 7 -7
30
2018
BRCA Challenge: BRCA Exchange as a global resource for variants in BRCA1 and BRCA2
Melissa S Cline , Rachel G Liao , Michael T Parsons , Benedict Paten
PLOS Genetics 14 ( 12) e1007752
66
2018
Reproducibility and Reuse of Adaptive Immune Receptor Repertoire Data.
Felix Breden , Eline T. Luning Prak , Bjoern Peters , Florian Rubelt
Frontiers in Immunology 8 1418
65
2017
COVID-19 Research: Navigating the European General Data Protection Regulation
Regina Becker , Adrian Thorogood , Johan Ordish , Michael J.S. Beauvais
Social Science Research Network
26
2020
Genomic Sequencing Capacity, Data Retention, and Personal Access to Raw Data in Europe.
Shaman Narayanasamy , Varvara Markina , Adrian Thorogood , Adriana Blazkova
Frontiers in Genetics 11 303
4
2020
Point-of-Care Genetic Tests for Infectious Disease: Legal Considerations
Adrian Thorogood , Ma'n Zawati , Bartha Knoppers
Current Pharmacogenomics and Personalized Medicine 12 ( 1) 43 -50
1
2014
A P3G generic access agreement for population genomic studies
Bartha Maria Knoppers , Rex L Chisholm , Jane Kaye , David Cox
Nature Biotechnology 31 ( 5) 384 -385
22
2013