Importance of Participant-Centricity and Trust for a Sustainable Medical Information Commons

摘要: Drawing on a landscape analysis of existing data-sharing initiatives, in-depth interviews with expert stakeholders, and public deliberations community advisory panels across the U.S., we describe features evolving medical information commons (MIC). We identify participant-centricity trustworthiness as most important an MIC discuss implications for those seeking to create sustainable, useful, widely available collection linked resources research other purposes.