Measuring health and well-being effects in family caregivers of children with craniofacial malformations.

作者: Nalin Payakachat , J. Mick Tilford , Werner BF Brouwer , N. Job van Exel , Scott D. Grosse

DOI: 10.1007/S11136-011-9870-2

关键词: Quality of life (healthcare)CraniofacialPublic healthWell-beingClinical psychologyConstruct validityFamily caregiversCross-sectional studyMedicineCaregiver burden

摘要: Purpose This research explores the sensitivity of three generic instruments for preference-weighting health states family caregivers children with craniofacial malformations (CFM). We also examine construct validity new CarerQol instrument measuring caregiver burden and general quality life.

参考文章(34)
Sheree L. Boulet, Scott D. Grosse, Margaret A. Honein, Adolfo Correa-Villaseñor, Children with orofacial clefts: health-care use and costs among a privately insured population. Public Health Reports. ,vol. 124, pp. 447- 453 ,(2009) , 10.1177/003335490912400315
Wendy Ungar, None, Economic Evaluation in Child Health ,(2010)
John E. Brazier, Jennifer Roberts, The estimation of a preference-based measure of health from the SF-12. Medical Care. ,vol. 42, pp. 851- 859 ,(2004) , 10.1097/01.MLR.0000135827.18610.0D
Chaim M. Bell, Sally S. Araki, Peter J. Neumann, The association between caregiver burden and caregiver health-related quality of life in Alzheimer disease. Alzheimer Disease & Associated Disorders. ,vol. 15, pp. 129- 136 ,(2001) , 10.1097/00002093-200107000-00004
John M. Tilford, Scott D. Grosse, James M. Robbins, Jeffrey M. Pyne, Mario A. Cleves, Charlotte A. Hobbs, Health state preference scores of children with spina bifida and their caregivers. Quality of Life Research. ,vol. 14, pp. 1087- 1098 ,(2005) , 10.1007/S11136-004-3305-2
John M. Tilford, James M. Robbins, Charlotte A. Hobbs, Improving estimates of caregiver time cost and family impact associated with birth defects. Teratology. ,vol. 64, ,(2001) , 10.1002/TERA.1097
W. B. F. Brouwer, N. J. A. van Exel, B. van Gorp, W. K. Redekop, The CarerQol instrument: A new instrument to measure care-related quality of life of informal caregivers for use in economic evaluations Quality of Life Research. ,vol. 15, pp. 1005- 1021 ,(2006) , 10.1007/S11136-005-5994-6
L. A. Prosser, G. T. Ray, M. O'Brien, K. Kleinman, J. Santoli, T. A. Lieu, Preferences and willingness to pay for health states prevented by pneumococcal conjugate vaccine. Pediatrics. ,vol. 113, pp. 283- 290 ,(2004) , 10.1542/PEDS.113.2.283