Health state preference scores of children with spina bifida and their caregivers.

摘要: Cost-effectiveness evaluations of interventions to prevent or treat spin a bifida require quality life information measured as preference scores. Preference scores care givers also may be relevant. This study tested whether the children with and their would decrease disability in child increased. Families aged 0–17 (N=98) were iden ti fied using birth defect surveillance sys tem state Arkansas. Primary giv ers chil dren identified other families an unaffected (N=49). for health states determined Health Utilities Index – Mark 2 (HUI2). Care giver Quality Well-Being (QWB) scale. Children categorized into three levels according location child’s lesion. Mean declined both affected primary In multivariate analysis, score was significant positive predictor giver’s score. A more modest association found by lesion location. The findings can inform cost-effec tiveness bifida.