MSA-QoL: spezifisches Bewertungsinstrument zur Erfassung der Lebensqualität bei Multisystematrophie
作者： F. Krismer , S. Duerr , M. Minnerop , T. Klockgether , M. Stamelou
DOI: 10.1007/S00115-013-3764-1
关键词: Gynecology 、 Medicine
摘要: Hintergrund Die Multisystematrophie (MSA) ist eine rasch fortschreitende neurodegenerative Erkrankung mit fruher Pflegeabhangigkeit und einem betrachtlichen Leidensdruck. Daher die Erfassung der gesundheitsbezogenen Lebensqualitat unumganglich. Dies kann seit kurzem mithilfe des krankheitsspezifischen MSA-QoL-Fragebogen, welcher bislang allerdings nur in englischer Sprache erhaltlich war, erfolgen. Nachfolgend berichten wir uber Erstellung deutschsprachigen Ubersetzung MSA-QoL dazugehorigen Validierungsstudie.
springer.com
sci-hub.se 参考文章(20)
Anette Schrag, Gregor K. Wenning, Niall Quinn, Yoav Ben-Shlomo, Survival in multiple system atrophy. Movement Disorders. ,vol. 23, pp. 294- 296 ,(2008) , 10.1002/MDS.21839
S. S. O'Sullivan, L. A. Massey, D. R. Williams, L. Silveira-Moriyama, P. A. Kempster, J. L. Holton, T. Revesz, A. J. Lees, Clinical outcomes of progressive supranuclear palsy and multiple system atrophy Brain. ,vol. 131, pp. 1362- 1372 ,(2008) , 10.1093/BRAIN/AWN065
David L. Streiner, Geoffrey R. Norman, Health Measurement Scales: A Practical Guide to Their Development and Use ,(1989)
Lisa M. Benrud-Larson, Paola Sandroni, Anette Schrag, Phillip A. Low, Depressive symptoms and life satisfaction in patients with multiple system atrophy Movement Disorders. ,vol. 20, pp. 951- 957 ,(2005) , 10.1002/MDS.20450
John E. Ware, Cathy Donald Sherbourne, The MOS 36-item short-form health survey (SF-36). I. Conceptual framework and item selection. Medical Care. ,vol. 30, pp. 473- 483 ,(1992) , 10.1097/00005650-199206000-00002
Gregor K Wenning, Francois Tison, Klaus Seppi, Cristina Sampaio, Anja Diem, Farid Yekhlef, Imad Ghorayeb, Fabienne Ory, Monique Galitzky, Tommaso Scaravilli, Maria Bozi, Carlo Colosimo, Sid Gilman, Clifford W Shults, Niall P Quinn, Olivier Rascol, Werner Poewe, Multiple System Atrophy Study Group, None, Development and validation of the Unified Multiple System Atrophy Rating Scale (UMSARS). Movement Disorders. ,vol. 19, pp. 1391- 1402 ,(2004) , 10.1002/MDS.20255
Anette Schrag, Caroline Selai, Chris Mathias, Philip Low, Jeremy Hobart, Niall Brady, Niall Patrick Quinn, Measuring health-related quality of life in MSA: The MSA-QoL Movement Disorders. ,vol. 22, pp. 2332- 2338 ,(2007) , 10.1002/MDS.21649
A. T. BECK, An inventory for measuring depression Archives of General Psychiatry. ,vol. 4, pp. 561- 571 ,(1961) , 10.1001/ARCHPSYC.1961.01710120031004
G. K. Wenning, Y. Ben Shlomo, M. Magalhães, S. E. Danie, N. P. Quinn, Clinical features and natural history of multiple system atrophy. An analysis of 100 cases. Brain. ,vol. 117, pp. 835- 845 ,(1994) , 10.1093/BRAIN/117.4.835
Anette Schrag, Felix Geser, Michaela Stampfer-Kountchev, Klaus Seppi, Martin Sawires, Martin Köllensperger, Christoph Scherfler, Niall Quinn, Maria T. Pellecchia, Paolo Barone, Francesca del Sorbo, Alberto Albanese, Karen Ostergaard, Erik Dupont, Adriana Cardozo, Eduardo Tolosa, Christer F. Nilsson, Håkan Widner, Olle Lindvall, Nir Giladi, Tanya Gurevich, Christine Daniels, Günther Deuschl, Miguel Coelho, Cristina Sampaio, Michael Abele, Thomas Klockgether, Nicole Schimke, Karla M. Eggert, Wolfgang Oertel, Ruth Djaldetti, Carlo Colosimo, Giuseppe Meco, Werner Poewe, Gregor K. Wenning, , Health-related quality of life in multiple system atrophy. Movement Disorders. ,vol. 21, pp. 809- 815 ,(2006) , 10.1002/MDS.20808