Children's psychosocial functioning and parents' quality of life in paediatric short stature: The mediating role of caregiving stress.

摘要: Objectives On the basis of multidimensional model caregiving process, this study aimed (a) to compare levels quality life (QoL) and psychological problems children with short stature stress QoL their parents, between diagnostic, treatment, current height deviation groups, (b) examine direct indirect links, via stress, children's psychosocial functioning parents' QoL. Method The sample was collected in 5 European countries comprised 238 dyads 8- 18-year-old adolescents a clinical diagnosis growth hormone deficiency or idiopathic one parents. The completed self-report measures height-related (Quality Life Short Stature Youth Core Module) (Strengths Difficulties Questionnaire); parents reported on own (EUROHIS-QOL-8 Index) Effects Parents subscale). Results Children who were treated achieved normal better compared those untreated stature. presented greater than height. Children's indirectly associated QoL, less these links invariant across diagnoses, treatment status, deviation. Conclusions These results suggest that, along treatments, multidisciplinary interventions paediatric endocrinology should be family-centred, by targeting both order improve individual family adaptation. Key Practitioner Message Height-related impairments more internalizing increase which turn has negative impact life, independently patients' diagnosis, deviation. In addition context target adolescents' functioning, as well provide cognitive behavioural strategies manage child's physical, emotional, social, problems. Caregiving routinely assessed selected strategic intervention for family-centred at promoting adaptation outcomes (e.g., life). Psychosocial prioritize had never been have stature,