Compliance with treatment and understanding of own disease in patients with severe and moderate haemophilia

摘要: It is well known that teenagers with chronic diseases have problems complying their treatment. The aim of this study was to evaluate the patient's knowledge haemophilia and his compliance prophylactic treatment, age at which patient took over responsibility for disease create educational material adolescents. This a prospective multicentre performed in Hemophilia Treatment Centres Scandinavia. A total 108 134 patients, between 13 25 years completed questionnaire, response rate 80%. Eighty-three patients had severe form haemophilia, 24 moderate one did not know severity disease. Seventy-eight were on median starting treatment 3.0 performing venepuncture 11.6 years. Sixty-seven 78 knew best time give morning. Even though 47 additional before sports activities. At mean 14.1 himself In cohort 73 aware heredity. shows rather high degree among but it great importance nurse continuously improve keep him benefit regular future being.