The impact of social factors on outcomes in patients with bleeding disorders

摘要: Introduction In haemophilia, clinical outcomes are mainly determined by the severity of clotting factor deficiency, treatment regimen, availability concentrate and age. Information about relevance patient-related factors such as education, social status or impact disease on patient's life is scarce. Aim To assess disease-related impairment certain aspects psychosocial in patients with inherited bleeding disorders (PWBD). Methods Consecutive a single centre were assessed questionnaires quality (SF-36). Social was defined school professional employment financial income well education their parents. Results Fifty-seven PWBD (mean age, 38 ± 16 years) enrolled, 60% treated on-demand; had median number 2.5 (0–34) annual bleeds orthopaedic joint score 6 (0–38). No significant differences found for across groups. More than half reported that haemophilia an childhood leisure activities. Patients high lives less satisfied (P < 0.002), worse all domains SF-36, (P < 0.024) more pain (P < 0.013). Conclusion The perceived patients’ seems to have stronger actual status.