The impact of severe haemophilia on the social status and quality of life among Austrian haemophiliacs

摘要: Summary.  Although many studies of the impact haemophilia on quality life were conducted, there is hardly any data social status haemophiliacs. It was aim our study to obtain Austrian haemophiliacs and compare these with an age- sex-matched reference population. Furthermore, we collected patients. We conducted a case–control in two centres 53 patients (mean age 36.7 ± 10.6 years) 104 male controls 36.7 ± 11.1 years). Socio-demographic using standardized questionnaire quality-of-life SF-36. More (56.6%) than (37.5%) married (P = 0.023), whereas more (17.3%) (3.8%) had partner whom they not (P = 0.016). The percentage having children equivalent both groups (47% 41% respectively), but number 1.5 2.1 controls, P < 0.007). A greater unemployed (34% patients, 9% P < 0.001) as well retired (23% 4% respectively; P < 0.001). Patients worse scores regarding physical functioning, role-physical, bodily pain general health (P < 0.001), vitality, role-emotional mental similar groups. Despite their disability, most share sound family environment. This suggests that are highly capable coping chronic disease indicated by good for health.