Perspectives of people with mild intellectual disabilities on care relationships at the end of life: A group interview study

作者: Nienke Bekkema , Anke JE de Veer , Cees MPM Hertogh , Anneke L Francke

DOI: 10.1177/0269216316640421

关键词: PsychologyInformed consentHonourFocus groupInclusion (education)Alternative medicinePalliative careClinical psychologyIntellectual disabilityFamily medicineNominal group technique

摘要: Background:Care relationships are crucial in tailoring the end-of-life care of a person with intellectual disabilities (ID) to their needs. Yet, almost all studies on for people ID have been conducted among caregivers. The views about at end life not specific focus research.Aim:To explore relevant dimensions from perspectives mild Netherlands.Design:Group interviews were using nominal group technique. Interviews inductively analysed by two researchers.Setting/participants:Seven groups participated (33 people). Inclusion criteria as follows: having ID, being able decide participation and give informed consent, receiving care. All interviewed twice.Results:Two found: (1) ‘Ascertain, record honour wishes’ ill person. Adequately dealing c...

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