End-of-life decisions: an important theme in the care for people with intellectual disabilities.
作者： A. Wagemans , H. Van Schrojenstein Lantman-de-Valk , I. Tuffrey-Wijne , G. Widdershoven , L. Curfs
DOI: 10.1111/J.1365-2788.2010.01276.X
关键词:
摘要: BACKGROUND: While end-of-life decisions in the general population have received attention several countries, not much is known about this people with intellectual disabilities (IDs). Therefore, prevalence and nature of were investigated a Dutch centre providing residential care for 335 IDs. METHOD: A retrospective study medical files who died between January 2002 July 2007. RESULTS: One or more taken 27 out 47 cases. non-treatment decision was seven residents, possibly shortening life expectancy some The family involved making half No information found process making. There no evidence notes that any IDs asked his her own opinion taking an decision. CONCLUSION: This demonstrates played part significant numbers within centre, but further studies are needed to establish decision-making processes.
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A.-M. The, Withholding the artificial administration of fluids and food from elderly patients with dementia: ethnographic study BMJ. ,vol. 325, pp. 1326- 1326 ,(2002) , 10.1136/BMJ.325.7376.1326
Jos V.M. Welie, Sander P.K. Welie, Patient decision making competence: Outlines of a conceptual analysis Medicine Health Care and Philosophy. ,vol. 4, pp. 127- 138 ,(2001) , 10.1023/A:1011441816143
Bregje D Onwuteaka-Philipsen, Aǵnes van der Heide, Dirk Koper, Inǵeborg Keij-Deerenberg, Judith AC Rietjens, Mette L Rurup, Astrid M Vrakking, Jean Jacques Georges, Martien T Muller, Gerrit van der Wal, Paul J van der Maas, Euthanasia and other end-of-life decisions in the Netherlands in 1990, 1995, and 2001 The Lancet. ,vol. 362, pp. 395- 399 ,(2003) , 10.1016/S0140-6736(03)14029-9
G J M W van Thiel, J J M van Delden, K de Haan, A K Huibers, Retrospective study of doctors' “end of life decisions” in caring for mentally handicapped people in institutions in the Netherlands BMJ. ,vol. 315, pp. 88- 91 ,(1997) , 10.1136/BMJ.315.7100.88
Sheila Hollins MB BS FRCPsych, Marie Therese Attard MRCPsych, Nicola von Fraunhofer MRCPsych, Sean McGuigan BSc FSS, Philip Sedgwick BSc FSS, Mortality in people with learning disability: risks, causes, and death certification findings in London Developmental Medicine & Child Neurology. ,vol. 40, pp. 50- 56 ,(2008) , 10.1111/J.1469-8749.1998.TB15356.X
Sander P.K. Welie, Joseph Dute, Herman Nys, Frans C.B. van Wijmen, Patient incompetence and substitute decision-making: an analysis of the role of the health care professional in Dutch law Health Policy. ,vol. 73, pp. 21- 40 ,(2005) , 10.1016/J.HEALTHPOL.2004.09.012
Irene Tuffrey-Wijne, Jane Bernal, Amelia Jones, Gary Butler, Sheila Hollins, People with intellectual disabilities and their need for cancer information European Journal of Oncology Nursing. ,vol. 10, pp. 106- 116 ,(2006) , 10.1016/J.EJON.2005.05.005
M. Wullink, H. M. J. van Schrojenstein Lantman-de Valk, G. J. Dinant, J. F. M. Metsemakers, Prevalence of people with intellectual disability in the Netherlands Journal of Intellectual Disability Research. ,vol. 51, pp. 511- 519 ,(2007) , 10.1111/J.1365-2788.2006.00917.X
Irene Tuffrey-Wijne, Jane Bernal, Jane Hubert, Gary Butler, Sheila Hollins, People with learning disabilities who have cancer: an ethnographic study British Journal of General Practice. ,vol. 59, pp. 503- 509 ,(2009) , 10.3399/BJGP09X453413
Agnes Van der Heide, Luc Deliens, Karin Faisst, Tore Nilstun, Michael Norup, Euǵenio Paci, Gerrit Van der Wal, Paul J Van der Maas, None, End-of-life Decision-Making in Six European Countries: Descriptive Study The Lancet. ,vol. 362, pp. 345- 350 ,(2003) , 10.1016/S0140-6736(03)14019-6