Using digital health to enable ethical health research in conflict and other humanitarian settings

作者: Eric D. Perakslis

DOI: 10.1186/S13031-018-0163-Z

关键词: Health services researchDigital healthVulnerabilityData securityPopulationInternet privacyBusinessData sharingInformation privacyResearch ethics

摘要: Conducting research in a humanitarian setting requires quantifiable quality measures to ensure ethical study conduct. Digital health technologies are proven improve and efficacy via automated data collection, improvement of reliability, fidelity resilience by improved provenance traceability. Additionally, digital methodologies can patient identity, privacy, transparency, sharing, competent informed consent, the confidentiality security operations. It seem counterintuitive press forward aggressively with at time heightened population vulnerability cyber concerns, but new approaches essential meet rapidly increasing demands research. In this paper we present case for modernization conflict other settings as vehicle ethics.

参考文章(45)
Hussam Jefee-Bahloul, Dylan Duchen, Andres Barkil-Oteo, Attitudes Towards Implementation of Store-and-Forward Telemental Health in Humanitarian Settings: Survey of Syrian Healthcare Providers Telemedicine and e-Health. ,vol. 22, pp. 31- 35 ,(2016) , 10.1089/TMJ.2015.0021
Doris Schopper, Ross Upshur, Francine Matthys, Jerome Amir Singh, Sunita Sheel Bandewar, Aasim Ahmad, Els van Dongen, None, Research Ethics Review in Humanitarian Contexts: The Experience of the Independent Ethics Review Board of Médecins Sans Frontières PLoS Medicine. ,vol. 6, pp. e1000115- ,(2009) , 10.1371/JOURNAL.PMED.1000115
Vincent Liu, Mark A. Musen, Timothy Chou, Data Breaches of Protected Health Information in the United States JAMA. ,vol. 313, pp. 1471- 1473 ,(2015) , 10.1001/JAMA.2015.2252
C. Sicotte, M. Jaana, D. Girouard, G. Paré, Prioritizing the Risk Factors Influencing the Success of Clinical Information System Projects - A Delphi Study in Canada Methods of Information in Medicine. ,vol. 47, pp. 251- 259 ,(2008) , 10.3414/ME0512
Sajan Ambadiyil, K.S. Soorej, V.P. Mahadevan Pillai, Biometric Based Unique ID Generation and One to One Verification for Security Documents Procedia Computer Science. ,vol. 46, pp. 507- 516 ,(2015) , 10.1016/J.PROCS.2015.02.075
Doris Schopper, Angus Dawson, Ross Upshur, Aasim Ahmad, Amar Jesani, Raffaella Ravinetto, Michael J Segelid, Sunita Sheel, Jerome Singh, None, Innovations in research ethics governance in humanitarian settings BMC Medical Ethics. ,vol. 16, pp. 10- 10 ,(2015) , 10.1186/S12910-015-0002-3
Toni Kazic, Ten Simple Rules for Experiments’ Provenance PLOS Computational Biology. ,vol. 11, pp. e1004384- ,(2015) , 10.1371/JOURNAL.PCBI.1004384
Nathan Ford, Edward J Mills, Rony Zachariah, Ross Upshur, Ethics of conducting research in conflict settings Conflict and Health. ,vol. 3, pp. 7- 7 ,(2009) , 10.1186/1752-1505-3-7
Beatrice Perrenoud, Venetia-Sofia Velonaki, Patrick Bodenmann, Anne-Sylvie Ramelet, The effectiveness of health literacy interventions on the informed consent process of health care users: a systematic review protocol. International Journal of Evidence-based Healthcare. ,vol. 13, pp. 82- 94 ,(2015) , 10.11124/JBISRIR-2015-2304