Seeking a "Race to the Top" in Genomic Cloud Privacy?

摘要: The relationship between data-privacy lawmakers and genomics researchers may have gotten off on the wrong foot. Critics of protectionism in current laws advocate that we abandon existing paradigm, which was formulated an entirely different medical research context. Genomic no longer requires physically risky interventions directly affect participants' integrity. But to simply strip away these protections for benefit projects neglects not only new concerns about data privacy, but also broader interests participants process. Protectionism privacy should be treated as unwelcome anachronisms. We instead seek develop updated, positive framework participant participation collective autonomy. It is beginning become possible imagine this framework, by reflecting developments bioinformatics, such secure remote processing, commons, health co-operatives.