Measuring caregiver outcomes in palliative care: a construct validation study of two instruments for use in economic evaluations

作者: Renske Hoefman , Hareth Al-Janabi , Nikki McCaffrey , David Currow , Julie Ratcliffe

DOI: 10.1007/S11136-014-0848-8

关键词: Construct validityPublic healthScale (social sciences)Cost–benefit analysisPalliative careNursingMEDLINEFamily medicinePsychological interventionQuality of life (healthcare)Medicine

摘要: Purpose Providing care to patients nearing the end of life can place a considerable burden on caregivers. Hence, policy decisions interventions in palliative should be guided by information this burden. This study investigates construct validation two preference-based caregiver outcome instruments suitable for economic evaluations: Carer Experience Scale (CES) and Care-related Quality Life (CarerQol) instrument. Moreover, reports experiences end-of-life care.

参考文章(66)
Julie Ratcliffe, John Brazier, J Salomon, Aki Tsuchiya, Measuring and Valuing Health Benefits for Economic Evaluation ,(2007)
Peter J Neumann, Gillian D Sanders, Louise B Russell, Joanna E Siegel, Theodore G Ganiats, None, Cost-effectiveness in health and medicine Oxford University Press. ,(1996)
Wendy Ungar, None, Economic Evaluation in Child Health ,(2010)
Job van Exel, Gjalt de Graaf, Werner Brouwer, Give me a break! Health Policy. ,vol. 88, pp. 73- 87 ,(2008) , 10.1016/J.HEALTHPOL.2008.03.001
Jina Kang, Dong Wook Shin, Ji Eun Choi, Makiko Sanjo, Soo Jin Yoon, Hwan Kyun Kim, Myoung Suk Oh, Hyang Suk Kwen, Hae Young Choi, Wook Hee Yoon, Factors associated with positive consequences of serving as a family caregiver for a terminal cancer patient Psycho-Oncology. ,vol. 22, pp. 564- 571 ,(2013) , 10.1002/PON.3033
Cretien van Campen, Alice H. de Boer, Jurjen Iedema, Are informal caregivers less happy than noncaregivers? Happiness and the intensity of caregiving in combination with paid and voluntary work. Scandinavian Journal of Caring Sciences. ,vol. 27, pp. 44- 50 ,(2013) , 10.1111/J.1471-6712.2012.00998.X
Renske J. Hoefman, Job van Exel, Werner Brouwer, How to Include Informal Care in Economic Evaluations PharmacoEconomics. ,vol. 31, pp. 1105- 1119 ,(2013) , 10.1007/S40273-013-0104-Z
Marc A Koopmanschap, Job N A van Exel, Bernard van den Berg, Werner B F Brouwer, An Overview of Methods and Applications to Value Informal Care in Economic Evaluations of Healthcare PharmacoEconomics. ,vol. 26, pp. 269- 280 ,(2008) , 10.2165/00019053-200826040-00001
Joan M. Teno, Measuring end-of-life care outcomes retrospectively Journal of Palliative Medicine. ,vol. 8, ,(2005) , 10.1089/JPM.2005.8.S-42
Alice Corà, Manuela Partinico, Marianna Munafò, Daniela Palomba, Health risk factors in caregivers of terminal cancer patients: a pilot study. Cancer Nursing. ,vol. 35, pp. 38- 47 ,(2012) , 10.1097/NCC.0B013E31820D0C23