Fit for purpose? The GDPR and the governance of European digital health
作者： Luca Marelli , Elisa Lievevrouw , Ine Van Hoyweghen
DOI: 10.1080/01442872.2020.1724929
关键词: Cornerstone 、 Corporate governance 、 Data governance 、 European union 、 General Data Protection Regulation 、 Digital health 、 Big data 、 Political science 、 Public administration
摘要: The introduction of the General Data Protection Regulation (GDPR) in 2018 served as cornerstone new data governance regime European Union. Informed by principles and values such a...
sci-hub.se 参考文章(69)
Sheila Jasanoff, In a Constitutional Moment: Science and Social Order at the Millennium Social Studies of Science and Technology: Looking Back, Ahead. pp. 155- 180 ,(2003) , 10.1007/978-94-010-0185-4_8
Helen Nissenbaum, Privacy as contextual integrity Washington Law Review. ,vol. 79, pp. 119- 157 ,(2004)
Serge Gutwirth, Mireille Hildebrandt, Profiling the European Citizen: Cross-Disciplinary Perspectives Springer Publishing Company, Incorporated. ,(2008)
Frank Pasquale, The Black Box Society: The Secret Algorithms That Control Money and Information ,(2016)
Brent Daniel Mittelstadt, Luciano Floridi, The Ethics of Big Data: Current and Foreseeable Issues in Biomedical Contexts Science and Engineering Ethics. ,vol. 22, pp. 303- 341 ,(2016) , 10.1007/S11948-015-9652-2
danah boyd, Kate Crawford, CRITICAL QUESTIONS FOR BIG DATA Information, Communication & Society. ,vol. 15, pp. 662- 679 ,(2012) , 10.1080/1369118X.2012.678878
Fred H. Cate, Protecting Privacy in Health Research: The Limits of Individual Choice California Law Review. ,vol. 98, pp. 1765- ,(2010) , 10.15779/Z38J988
Federica Lucivero, Barbara Prainsack, The lifestylisation of healthcare? 'Consumer genomics' and mobile health as technologies for healthy lifestyle. Applied and Translational Genomics. ,vol. 4, pp. 44- 49 ,(2015) , 10.1016/J.ATG.2015.02.001
Erika Check Hayden, Informed consent: A broken contract Nature. ,vol. 486, pp. 312- 314 ,(2012) , 10.1038/486312A
Alessandro Mantelero, The Future of Consumer Data Protection in the E.U. Rethinking the 'Notice and Consent' Paradigm in the New Era of Predictive Analytics Social Science Research Network. ,(2014)